He said it would all be worth it as long as he could go on Wednesday. That is BINGO day for the kids at the hospital. He got his wish!
He is such a trooper! They had to replace the one he had put in 3 years ago because the batteries were going dead. He also had to had the lead wires replaced in his neck. So the poor kid got a double wammie! He had a hard time with the morphine but did an amazing job pullin through the rest!
For those of you that don't know what a VNS is it stands for Vegas Nerve Stimulator. Because Jacob has epilepsy he is able to have cutting edge technology place in his body! He's like the Million Dollar Boy. The VNS is a disk the size of a half dollar coin. It is placed under the skin with a lead wire that goes up the neck and connects to Jacob's Vegas nerve. From there is sends off electrical impulses every minutes and a half that counter act the seizure activity he has constantly going on in his brain. We he first got the VNS (first grade) he was having 30-40 petite mal seizures a day and 3-4 grand mals a week. This totally to out ALL of his petites and he is down to only ONE grand this entire year!!! We love this thing!!! The only bummer is the scars it leaves on his poor little body.
We have been covering him up with aloe and mederma. We have high hopes that the scars will go down!
Jacob, you are an awesome kiddo!!!
3 comments:
Jacob you are sooooo brave! I don't know if I could have done what you did! WoW!
That is so cool. I didnt know Jacob had epilepsy. I am so glad to hear that is helping him. Very cool what technology can do nowadays. Give him a little hug for me!! i just had surgery so I know its no fun. :)
I am so glad to hear the VNS has worked well for Jacob. My daughter is 7 and will be having her VNS surgery on Mon Oct 6th in houston. She is very nervous. I would like to know what to expect after the surgery as far as pain, side effects, scarring, how he has tolerated it when it is on. Any info you could give me would be great. SHe has been on 7 meds and no luck. Thanks, Stacey
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